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Hugging a Pillow

PELVIC CONGESTION SYNDROME (PCS)

This site is only for informational purposes. 

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PCS FEELS LIKE...​

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‘....’  PCS Patient

WHAT IS PCS?​

 

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​When looking for research articles, it can be helpful to search other conditions you have and PCS to see if they are related. If you are specifically concerned about the treatment, it can be helpful to search that specific treatment.  Check with your local library if the articles you need aren't free.  Google Scholar is helpful and has a lot of free resources.​

HELPFUL RESEARCH ARTICLES AND MEDICAL SITES​

Research articles can be helpful and validating, but frequently there is a lack of research.

GETTING A DIAGNOSIS AND TREATMENT​

If you think you have PCS, use this info to get to the right doctor or ask your primary care doctor to preform the tests.

Image by National Cancer Institute

  • Many struggle for years to get a PCS diagnosis​

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  • Use the FB pages below to find a doctor in your area.  It's important you find a doctor familiar with PCS and one who understands other vascular compressions.

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  • Multiple specialists treat ​

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IN THE NEWS​

Many people share their stories because it was so difficult to get a diagnosis, even after Long COVID.

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FACEBOOK GROUPS FOR PCS​

It can be helpful to connect with others about their experiences.  You can ask about doctors in your state, how their treatment went, compare symptoms, and get support from others who understand what it's like to have PCS.

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  • Try to join groups with the most members to give you a larger sample size and a higher probability of finding someone with symptoms like yours. 

  

  • Remember that Facebook is public and follow the group rules. 

  

  • Go to this page for more helpful hints on using Facebook as a resource.

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  • We've listed a few groups, but there are others.  Pick your favorite and disregard the others.  

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coming soon

coming soon

 

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