MAY-THURNER SYNDROME (MTS)
This site is only for informational purposes.
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MAY-THURNER SYNDROME FEELS LIKE...​
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WHAT IS MAY-THURNER SYNDROME?​
May-Thurner syndrome (MTS), also know as Iliac Vein Compression Syndrome or Cockett's Syndrome is caused when the left iliac vein is compressed by the right iliac artery causing left leg swelling and sometimes DVT (deep vein thrombosis) or blood clots. The opposite can happen on the right side causing right leg swelling, and some people have it on both sides.
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Main Symptoms of MTS:
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leg pain and/or swelling, but can occur without swelling
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leg heaviness
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increased pain or swelling when upright or exercising
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brain fog
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dizziness
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back pain
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cold feet
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anxiety
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fatigue
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varicose veins
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pelvic pain or fullness
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pain with sexual arousal, intercourse, or after orgasm
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breathlessness with minimal exertion
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thigh discomfort after sitting
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reoccurring blood clots
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skin discoloration and ulcers
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HELPFUL RESEARCH ARTICLES AND MEDICAL SITES​
Research articles can be helpful and validating, but frequently there's not enough research. This list is to help get you started.
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May Thurner syndrome revealed by left calf venous claudication during running, a case report
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May-Thurner-constellation (May-Thurner-syndrome, Cockett’s syndrome)
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May-Thurner syndrome: History of understanding and need for defining population prevalence
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May-Thurner Syndrome: A Case Report and Review of the Literature
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Diagnosis and management of iliac vein thrombosis in pregnancy resulting from May–Thurner Syndrome
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May-Thurner syndrome: can it be diagnosed by a single MR venography study?
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May–Thurner syndrome and other obstructive iliac vein lesions: Meaning, myth, and mystery
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What the young physician should know about May-Thurner syndrome
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Endovascular Management of Iliac Vein Compression (May-Thurner) Syndrome
When looking for research articles, it can be helpful to search other conditions you have and MTS to see if they are related. If you are specifically concerned about the treatment, it can be helpful to search that specific treatment. Check with your local library if the articles you need aren't free. Google Scholar is helpful and has a lot of free resources.​
GETTING A DIAGNOSIS AND TREATMENT​
If you think you have MTS, use this info to get to the right doctor or ask your primary care doctor to order the imaging.
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You may or may not need a referral to an Interventional Radiologist. Interventional radiologists treat MTS. It is important to find a provider with experience treating MTS, some doctors have more experience than others. Ask your doctor how much experience they have treating MTS and find a doctor in your area that is familiar with the condition. Look in the MTS Facebook Groups for recommendations of doctors in your area.
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MTS is generally diagnosed with ultrasound, CT, MRI, and venogram.
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MTS is most often treated with a stent, but can be treated other ways. Some people are allergic to the metal used in the stents; check with your doctor if this is a concern for you. Sometimes doctors will recommend blood thinners and compression stockings. If this isn't helping, advocate for more aggressive treatment like a stent.
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If you have pain in your left flank, left sided migraines, POTS, or pain in your epigastric area, you should also be evaluated for other vascular compressions, especially if you are hypermobile. It can be difficult to find providers who understand the complexity of vascular compressions, but treatment of MTS can sometimes worsen other compressions if this isn't considered. Look at our pages on Hypermobility, SMAS, Pelvic Congestion Syndrome, Nutcracker Syndrome, and MALS if you think you may have other vascular compressions. If sitting is unbearable and you have sciatica, look at Deep Gluteal Pain Syndrome.
Mom's Struggle with Life-altering Blood Clot Sparks Awareness Drive
Mindy Basara Shares Life-changing Diagnosis, Treatment of May-Thurner Syndrome
Quick Action Saves Young Woman’s Leg – and Possibly her Life
FDA Clears Boston Scientific Vici Venous Stent to Treat Deep Venous Blockages
The Right Treatment Changed my Life: Jan's Story
A Blood Clot Almost Killed Me After My Pregnancy. Here’s What You Should Know
14-Year-Old Can’t Eat Solid Foods Because of Crippling Pressure on Her Internal Organs
What it's like living with multiple syndromes after surviving several killer blood clots
Live. Breathe. Throw: Exeter’s Swett back on track after major health scare
A mystery illness and one woman's decade-long fight against misdiagnosis
Social Sharing
Ryu’s Blood Clot Story
A Life-Threatening Diagnosis at 23 Years Old Changed My Life: Ashley Cassidy's Story
IN THE NEWS​
Many people share their stories because it was so difficult to get a diagnosis.
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FACEBOOK GROUPS FOR MTS​
It can be helpful to connect with others about their experiences. You can ask about doctors in your state, how their treatment went, compare symptoms, and get support from others who understand what it's like to have MTS.
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Try to join groups with the most members to give you a larger sample size and a higher probability of finding someone with symptoms like yours.
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Remember that Facebook is public and follow the group rules.
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Go to this page for more helpful hints on using Facebook as a resource.