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CHRONIC FATIGUE SYNDROME (ME/CFS)

This site is only for informational purposes. 

ME/CFS FEELS LIKE...

‘...’  ME/CFS Patient

WHAT IS ME/CFS?

 

The Bateman Horne Center thoroughly describes ME/CFS on their website.  click here for info

When looking for research articles, it can be helpful to search other conditions you may have and ME/CFS to see if they are related. If you are specifically concerned about the treatment, it can be helpful to search that specific treatment.  Check with your local library if the articles you need aren't free.  Google Scholar is helpful and has a lot of free resources.​

HELPFUL RESEARCH ARTICLES AND MEDICAL SITES

Research articles can be helpful and validating, but frequently there is a lack of research.

TREATMENT FOR ME/CFS

Exercise is often recommended to treat POTS, but it's easy to over do it.  Here are some tips!

Image by S Migaj

GETTING A DIAGNOSIS AND TREATMENT

If you think you have ME/CFS, use this info to get to the right doctor or ask your primary care doctor to preform the tests.

Image by Sasun Bughdaryan
  • Many struggle for years to get an ME/CFS diagnosis and are instead told they have anxiety, even by cardiologists.  Since COVID, more practitioners know about ME/CFS, but still not enough.  There is now an increase in research and more awareness, but COVID Long Haulers are frustrated with the lack of treatment and awareness of ME/CFS.

  • Use the FB pages below to find a doctor in your area.  It's important you find a doctor familiar with ME/CFS, if not, they may tell you it's anxiety or mental illness.  Some states have pages for COVID Long Haulers that have recommendations for ME/CFS specialists in your area.  Currently, not a lot of doctors advertise that they treat ME/CFS, but this might be changing due to COVID Long Haulers.

IN THE NEWS

Many people share their stories because it was so difficult to get a diagnosis, even after Long COVID.

FACEBOOK GROUPS FOR ME/CFS

It can be helpful to connect with others about their experiences.  You can ask about doctors in your state, how their treatment went, compare symptoms, and get support from others who understand what it's like to have ME/CFS.

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  • Try to join groups with the most members to give you a larger sample size and a higher probability of finding someone with symptoms like yours. 

  

  • Remember that Facebook is public and follow the group rules. 

  

  • Go to this page for more helpful hints on using Facebook as a resource.

  • We've listed a few groups, but there are others.  Pick your favorite and disregard the others.  

  • Long Covid Groups specific to your state can also have helpful ME/CFS resources

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