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MAST CELL ACTIVATION SYNDROME (MCAS)

This site is only for informational purposes. 

MCAS FEELS LIKE...

‘....’  MCAS Patient

WHAT IS MCAS?

 

TMS For a Cure thoroughly describes MCAS on their website.  click here for info

When looking for research articles, it can be helpful to search other conditions you have and MCAS to see if they are related. If you are specifically concerned about the treatment, it can be helpful to search that specific treatment.  Check with your local library if the articles you need aren't free.  Google Scholar is helpful and has a lot of free resources.​

HELPFUL RESEARCH ARTICLES AND MEDICAL SITES

Research articles can be helpful and validating, but frequently there is a lack of research.

TIPS FOR COPING WITH MCAS

Allergic Reaction

GETTING A DIAGNOSIS AND TREATMENT

If you think you have MCAS, use this info to get to the right doctor or ask your primary care doctor to preform the tests.

A female scientist in a laboratory looks
  • COMING SOON

IN THE NEWS

Many people share their stories because it was so difficult to get a diagnosis, even after Long COVID.

FACEBOOK GROUPS FOR MCAS

It can be helpful to connect with others about their experiences.  You can ask about doctors in your state, how their treatment went, compare symptoms, and get support from others who understand what it's like to have MCAS.

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  • Try to join groups with the most members to give you a larger sample size and a higher probability of finding someone with symptoms like yours. 

  

  • Remember that Facebook is public and follow the group rules. 

  

  • Go to this page for more helpful hints on using Facebook as a resource.

  • We've listed a few groups, but there are others.  Pick your favorite and disregard the others.  

  • Long Covid Groups specific to your state can also have helpful MCAS resources

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