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Stomach Ache

MEDIAN ARCUATE LIGAMENT SYNDROME (MALS)

This site is only for informational purposes. 

MALS FEELS LIKE...

‘I didn't even know I had MALS because my Nutcracker Syndrome was causing so many issues, but after having an autotransplant, MALS acted up causing pain with eating and severe nausea.’  MALS Patient

WHAT IS MALS?

 

The MALS Foundation thoroughly describes MALS on their website.  click here for info

When looking for research articles, it can be helpful to search other conditions you have and MALS to see if they are related. If you are specifically concerned about the treatment, it can be helpful to search that specific treatment.  Check with your local library if the articles you need aren't free.  Google Scholar is helpful and has a lot of free resources.​

HELPFUL RESEARCH ARTICLES AND MEDICAL SITES

Research articles can be helpful and validating, but frequently there is a lack of research.

GETTING A DIAGNOSIS AND TREATMENT

If you think you have MALS, use this info to get to the right doctor or ask your primary care doctor to preform the tests.

Medical Consultation
  • Many struggle for years to get a MALS diagnosis and are instead told they have anxiety or an eating disorder.  We recommend that you find a doctor familiar with MALS for a thorough evaluation before giving up on this diagnosis, especially if you have POTS, dysautonomia, or EDS.

  • Some doctors require different tests, but tests commonly required for diagnosis include a CT of the abdomen and pelvis with contrast (can be ordered by any doctor), a celiac plexus block (usually done by an interventional radiologist)​, and an ultrasound to check the celiac velocity and the mesenteric artery.  A doppler ultrasound protocol can be found in the MALS Pals FB group files.  A "Path to Diagnosis" can be found in the MALS Awareness Community FB group files.

  • Multiple specialists treat MALS.  The MALS Facebook groups below will have doctor recommendations in your state or a near by state.  There is some debate between open and arthroscopic surgeries, but we think the success rate of the doctor is more important to consider as well as the location of the doctor and accessibility.  It is important to find a physician who takes nerve involvement into consideration because some symptoms of dysautonomia can relieved by removing scar tissue around the celiac plexus.    

IN THE NEWS

Many people share their stories because it was so difficult to get a diagnosis.

FACEBOOK GROUPS FOR MALS

It can be helpful to connect with others about their experiences.  You can ask about doctors in your state, how their treatment went, compare symptoms, and get support from others who understand what it's like to have MALS.

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  • Try to join groups with the most members to give you a larger sample size and a higher probability of finding someone with symptoms like yours. 

  

  • Remember that Facebook is public and follow the group rules. 

  

  • Go to this page for more helpful hints on using Facebook as a resource.

  • We've listed a few groups, but there are others.  Pick your favorite and disregard the others.  

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