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This site is only for informational purposes.
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CSF LEAKS FEEL LIKE...​
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WHAT IS A CSF LEAK?​
The CSF Leak thoroughly describes CSF Leak on their website. click here for info
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​When looking for research articles, it can be helpful to search other conditions you may have and CSF Leaks to see if they are related. If you are specifically concerned about the treatment, it can be helpful to search that specific treatment. Check with your local library if the articles you need aren't free. Google Scholar is helpful and has a lot of free resources.​
HELPFUL RESEARCH ARTICLES AND MEDICAL SITES​
Research articles can be helpful and validating, but frequently there is a lack of research.
GETTING A DIAGNOSIS AND TREATMENT​
If you think you have POTS, use this info to get to the right doctor or ask your primary care doctor to preform the tests.
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COMING SOON​
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If you have a CSF Leak and left sided pain, epigastric pain, struggle to eat, or you feel like you have more than just a CSF Leak, check out our pages on POT, dysautonomia, MALS, Hypermobility, Nutcracker Syndrome, ME/CFS, SMAS, MCAS, and Pelvic Congestion Syndrome. Sometimes POTS symptoms are alleviated by treating vascular compressions.
IN THE NEWS​
Many people share their stories because it was so difficult to get a diagnosis, even after Long COVID.
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FACEBOOK GROUPS FOR CSF LEAKS​
It can be helpful to connect with others about their experiences. You can ask about doctors in your state, how their treatment went, compare symptoms, and get support from others who understand what it's like to have a CSF Leak.
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Try to join groups with the most members to give you a larger sample size and a higher probability of finding someone with symptoms like yours.
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Remember that Facebook is public and follow the group rules.
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Go to this page for more helpful hints on using Facebook as a resource.
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We've listed a few groups, but there are others. Pick your favorite and disregard the others.
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