FIBROMYALGIA
This site is only for informational purposes.
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FIBROMYALGIA FEELS LIKE...​
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WHAT IS FIBROMYALGIA?​
The Bateman Horne Center thoroughly describes Fibromyalgia on their website. click here for info
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MORE COMING SOON​
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​When looking for research articles, it can be helpful to search other conditions you are researching and fibromyalgia to see if they are related. If you are specifically concerned about the treatment, it can be helpful to search that specific treatment. Check with your local library if the articles you need aren't free. Google Scholar is helpful and has a lot of free resources.​
HELPFUL RESEARCH ARTICLES AND MEDICAL SITES​
Research articles can be helpful and validating, but frequently there is a lack of research.
TREATMENT FOR FIBRO​
Exercise is often recommended to treat POTS, but it's easy to over do it. Here are some tips!
GETTING A DIAGNOSIS AND TREATMENT​
If you think you have fibromyalgia, use this info to get to the right doctor or ask your primary care doctor to preform the tests.
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COMING SOON​
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Use the FB pages below to find a doctor in your area. It's important you find a doctor familiar with POTS, if not, they may tell you it's anxiety. You may also try searching your state's name and POTS or Dysautonomia on FB to find more FB pages. Some states also have pages for COVID Long Haulers that have recommendations for POTS doctors in your area. Currently, not a lot of doctors advertise that they treat POTS, but this might be changing due to COVID Long Haulers.
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If you have fibromyalgia and left sided pain, epigastric pain, struggle to eat, or you feel like you have more than just fibro, check out our pages on POTS, dysautonomia, MALS, Hypermobility, Nutcracker Syndrome, ME/CFS, SMAS, MCAS, and Pelvic Congestion Syndrome. Sometimes patients' rare symptoms are diagnosed as fibromyalgia when much more could be going on.
IN THE NEWS​
Many people share their stories because it was so difficult to get a diagnosis.
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FACEBOOK GROUPS FOR FIBROMYALGIA​
It can be helpful to connect with others about their experiences. You can ask about doctors in your state, how their treatment went, compare symptoms, and get support from others who understand what it's like to have fibromyalgia.
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Try to join groups with the most members to give you a larger sample size and a higher probability of finding someone with symptoms like yours.
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Remember that Facebook is public and follow the group rules.
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Go to this page for more helpful hints on using Facebook as a resource.
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We've listed a few groups, but there are others.
